What if we need to postpone or cancel our appointment?

We understand that things can change and you may not be able to make your appointment on a given day. Please give us as much notice as possible if you would like to rearrange your appointment for another day. If we have enough notice (we ask for at least one month’s notice if possible) we may be able to roll over any deposit paid to a future session. 

We try to be as flexible as possible, so please contact us as soon as you can if you know you are unable to attend.

If you do not turn up for the appointment and do not tell us, your deposit will be taken as a cancellation fee.  

Our deposits are strictly non-refundable, so if you cancel your appointment and do not wish to rearrange your appointment, we will not be able to refund your deposit.

Our cancellation policy is available to view on our website here.

How do I connect with other Brainwave families?

After our Family Facilitators have contacted you following your initial assessment, you will be invited to join their private Facebook group. This is only accessible to the families who are on Programme with us at Brainwave, which means that it can be safely accessed by families to discuss issues, ask questions, share information etc. without it being seen publically. 

The group is moderated and administered by the Family Facilitators as well as another member of Brainwave staff who deals with all our social media. The idea is that if, for example, you wish to ask if anyone has thoughts about sleep issues, feeding, or if you would like to make contact with another Brainwave family in your area, you can do so easily and securely. Also, requests can be made for a Family Facilitator to contact you privately in whichever way is most convenient by email, phone, text or private messaging. 

If you do not use Facebook, a Family Facilitator will telephone or email you from time to time or you can contact them at any time with any queries.  If you do not wish the Family Facilitator to contact you after the initial assessment follow-up, simply let them know, they will not be offended.

What is the role of the Family Facilitators?

One of our Family Facilitators will contact you around six weeks after you have completed the initial assessment to check all is well and to help answer any new questions that might arise. 

A Family Facilitator will telephone or email you from time to time or you can contact them at any time with any queries. The level of communication is in your hands. If you do not wish the Family Facilitator to contact you after the initial assessment follow-up, simply let them know, they will not be offended.

Our Family Facilitators also run our secret Facebook Group for Brainwave families, which you will be invited to join, should you wish.

Further details about the role of our Family Facilitators can be found on our website.

What are the costs involved?

Full details of our fee structure are available here or please call us on 01278 429089.

What should we expect at an initial assessment?

At Brainwave, we design individual Therapy Programmes to be carried out at home. Your child’s Programme could contain a mixture of educational, physical, sensory or speech exercises depending on what we find during our initial assessment. Sometimes the Programmes are designed to be followed in a specific order which will be explained to you by the therapists.

The day consists of a general assessment by therapists from different backgrounds to ascertain the needs of your child. The therapists include Physiotherapists, Speech and Language Therapists and Learning Development Specialists. They will then devise a Programme specifically tailored to the needs and personality of your child. The therapists will then explain and demonstrate the Programme and you will have plenty of time to try it out yourself before you leave so that you are able to carry out the Programme properly at home. The techniques we use are all mainstream and based on the principles of neuroplasticity. It is Brainwave’s holistic approach and the time that we can spend with you, that differentiates us from most of the services families can usually access. 

The initial assessment can be quite tiring on both child and family, but we are flexible with our timings so if a break is needed or a longer lunch, we can amend our sessions accordingly.

The therapists will design the Programme to fit in with your lifestyle to make it as easy as possible for you to carry it out.  We also appreciate that lives are not static, so at any time in the future, please let us know if there are lifestyle changes that impact on you doing the Programme and we will do our best to change the Programme to suit your new needs.  When you leave after the initial assessment, you will be given a DVD of the exercises that make up your individual Programme. If you need help regarding the Programme, please contact the Centre.

Is funding support available?

We understand the financial pressures that many families face and to help ease this, we offer a means-tested Priority Fund (only available to those living in the UK) to help some families cover the cost of using Brainwave. If you are interested in finding out more about our Priority Fund, please contact us via email priorityfund@brainwave.org.uk

Everyone attending Brainwave is expected to pay a deposit for their appointment, including those who receive support from the Priority Fund. If you will struggle to pay for your deposit, please contact via email enquiries@brainwave.org.uk

What are the fundraising talks?

As a registered charity, Brainwave relies on the voluntary income we raise through fundraising activities, events and income from our Charity Shops in the South West to supplement the fees paid by families.

If you are attending Brainwave for a reassessment, we would love to tell you more about our fundraising activities and to chat about how you, your family or your colleagues could help raise vital awareness and funds for Brainwave. You can, of course, find out further information on our website.

Even if you’ve previously spoken to a member of our team, it might be interesting to catch up with us about our latest news and to talk about how you could potentially get involved.

Don’t worry, we won’t make you sign up for a marathon…unless you want to, of course!

What should we bring or wear?

We advise everyone who attends an assessment to wear loose-fitting, comfortable clothes (including the adults!). Shorts and t-shirt are ideal (or Babygro for those under 12 months old), but do bring extra layers just in case.

Being in a new environment can be unsettling, so please feel free to bring one or two of your child’s favourite toys to help them to settle. Just remember to take them home with you!

When do I need to come back for a reassessment?

We usually suggest seeing your child every six months for a reassessment, which takes place over the course of one day. 

During this day we will check the exercises and change the Programme as needed. If your child is seeing a Physiotherapist in the South West Centre, you would be welcome to opt-in to a hydrotherapy session (subject to staff availability).

Can other people carry out the Brainwave Programme with my child?

Having a team of people to help deliver the Brainwave Programme is a great idea and you may find it useful to create a rota to show who will be involved and when.

During your visit, we will film the exercises during the teaching sessions and provide you with a DVD to take home. We will also give you a laminated copy of the Brainwave Programme with exercise details. These are useful tools not only for yourself but for any other friends or family who are happy to be involved with delivering the Brainwave Programme. Remember to demonstrate the techniques and show them the DVD beforehand so they know what to do.

What will we need to carry out the Brainwave Programme?

During your visit, we will film the exercises during the teaching sessions and provide you with a DVD to take home. We will also give you a laminated copy of the Brainwave Programme with exercise details. These are useful tools not only for yourself but for any other friends or family who are happy to be involved with delivering the Programme. Remember to demonstrate the techniques and show them the DVD beforehand so they know what to do.

We recommend using a quiet room in your house for the Brainwave Programme, away from any distractions. We suggest having a separate box of toys to use specifically with the Programme.

A stopwatch is useful to help keep track of the timings on the Programme.

We will lend you most of the equipment you may require (physio balls, wedges etc) and can send these to you if transporting them back after an assessment is an issue. When returning for your reassessment, we ask that you bring back the equipment so we can swap it for different items as required.

The equipment we loan out is expensive, so if you decide not to continue with the Brainwave Programme, you will need to arrange to return the equipment to one of our Centres.

How often should we carry out the Brainwave Programme?

The Brainwave Programme itself is designed to be completed five-six times per week. It is important to have at least one day off per week and do not do the Programme when your child is ill. Where possible, try to make it fun and enjoyable for everyone taking part. We suggest taking a break from the Programme for a week or two when you go on your holidays, but remember to get back into your routine when you return.

On paper, the Brainwave Programme will last 20-30 minutes, but it can take a little longer in the beginning as you and the child get used to the exercises and the routine.

You may like to do the Programme at a particular time each day when your child is most alert and ready for the exercises.

What happens to any remaining allocated funds, if we stop attending Brainwave?

If you stop attending Brainwave and we still have funds allocated for your child (as part of the former Child Sponsorship or Guardianship schemes) these funds will be made available to other families in need and following a Brainwave Programme. This is in line with the recent changes we have made to our Guardianship scheme, in order to ensure that as many families as possible can benefit from often limited resources.

What were the Child Sponsorship and Guardians schemes?

Brainwave used to support families who asked for financial assistance by fundraising for specific children (or specific geographical areas) and setting money aside for these individual children towards future assessments. It was also possible for a family to raise funds for Brainwave and for a percentage to be set aside specifically for the use of their child. This scheme was called Child Sponsorship.

We also ran a Guardianship Scheme, where individuals would support specific children, by providing funding to pay for two reassessments over the course of a year.

As Brainwave and the number of families we engage with grew in size, both of these schemes ceased to be fit for purpose and stopped us from being able to offer financial support to as many families as possible. As such, in 2019 we stopped allocating funds to specific children in this way and instead we introduced the Priority Fund, a means-tested bursary open to all families.

Families who had previously benefited from Child Sponsorship or old-style Guardianship funds will continue to be supported using the restricted funds that we have accrued over the years, for as longs as these restricted funds are available.