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Clark’s Story 💙

Clark has 1p36 Deletion Syndrome, a rare chromosome disorder. He began having epileptic seizures at five months old and has been following a Brainwave Therapy Programme since 2016.

Clark has a learning disability, developmental delay, visual and hearing ...impairments, sensory processing disorder, epilepsy and cardiomyopathy. He is nonverbal and has limited mobility, although his mum says he can crawl for miles for the right biscuit!

After other parents recommended Brainwave, Clark’s family contacted the team and felt they had found something special from the very first call.

During his assessment, the therapists listened to the family and identified areas where Clark needed support, including mobility, communication, sensory integration, engagement and independence. They created a personalised programme of small, achievable activities that the whole family could work on together at home.

Since then, Clark’s mobility has developed enormously. He can crawl and bottom shuffle between rooms and manage stairs. With support, he can also stand from a kneeling position.

His communication continues to grow too. Clark can make choices using objects and photographs, giving him a way to express himself. Makaton has also helped his family communicate with him and reduced his frustration.

Clark’s sensory programme includes swinging, bouncing, rolling and playing with pasta, play dough and slime. With repetition and encouragement, experiences that once felt impossible are becoming possible. He recently went bowling, coped brilliantly with the lights, music and crowds, and even got a strike! 🎳

Told by his mum, Laura

“Brainwave has changed our son’s life, our family’s life and the way we see our once bleak, now bright future. Clark’s world has opened up and continues to grow.”

Would you like to learn more about how Brainwave supports children and their families?

📞 01278 429089
📧 enquiries@brainwave.org.uk

#Brainwave #ClarksStory #1p36DeletionSyndrome #FamilyStories #SupportingFamilies

We’re finalists!

We’re delighted to announce that Brainwave has been named a finalist for Charity of the Year at the Sedgemoor Chamber of Commerce Business Excellence Awards!

This recognition means so much to our team and reflects the dedication of our staff, volunteers, ...supporters and families.

We can’t wait to celebrate alongside all the brilliant finalists in November. Wish us luck!

#Brainwave #CharityOfTheYear #SedgemoorBusinessExcellenceAwards #BusinessAwards #Charity #SomersetBusiness

👕 Finished your summer clear-out?

Don't store it. Donate it. 💙

Your good-quality pre-loved clothes, accessories and household items could find a new home while helping Brainwave continue supporting children and families.

So if you're making room for ...winter, why not give the things you no longer need a new purpose?

👉 Drop your good-quality donations into your local Brainwave charity shop.

#Brainwave #BrainwaveShops #Donate #PreLoved #CharityShop #SustainableShopping #SupportingChildren

🏡 A comfortable home from home at Brainwave Bridgwater

Brainwave supports families from across the country, which is why we offer accessible accommodation at our Bridgwater Centre.

Wessex Lodge and Edinburgh Lodge are available for just £65 per night and include:

...🛏️ Two bedrooms
🚿 An accessible wet room
🍽️ A fully equipped, self-catering kitchen
🛋️ A spacious open-plan lounge and dining area
♿ Plenty of room for mobility aids
❄️ Air conditioning
🚗 Convenient parking directly outside

Families can cook and eat as they would at home or relax and order a takeaway after a busy day.

Our lodges remove the stress of finding suitable accommodation and provide a welcoming place to relax throughout your visit.

To find out more or check availability, get in touch:

📧 enquiries@brainwave.org.uk
📞 01278 429089

#Brainwave #BrainwaveBridgwater #AccessibleAccommodation #FamilyAccommodation #HomeFromHome #Accessibility #Bridgwater #Somerset

Welcome to the team, Hannah! 💙

Hannah, our Partnerships and Engagement Manager for the South West, shares how she’s settling into life at Brainwave:

“I’m quickly finding my feet as Partnerships and Engagement Manager for the South West at Brainwave. I’ve been super ...fortunate to see for myself the incredible work our therapists and families do together.

One of the best parts has been meeting some of the brilliant people and businesses who already support us. I love hearing the stories behind why people first got involved with Brainwave, what they enjoy about being part of our community and what they’d like to see more of.

And I’ve picked an exciting time to join! 2027 marks Brainwave’s 45th anniversary, and we’re already starting to shape a fantastic line-up of events and opportunities to celebrate this very special milestone together.

I can’t wait to share more as our plans develop. In the meantime, I’d really love to hear from supporters old and new. Please get in touch and say hello! I’m always happy to have a cuppa and a chat.”

#Brainwave #TeamBrainwave #CommunitySupport

Brainwave Welcomes Lord Iain McNicol as Patron

We’re delighted to announce that Lord Iain McNicol has joined Brainwave
as a Patron.

Our Patrons play an important role in supporting and championing Brainwave, helping us raise awareness of the work we do with children and ...families across the UK.

We’re incredibly grateful to Lord McNicol for his support and look forward to working together to share Brainwave’s work with an even wider audience and help more children reach their potential.

A very warm welcome to the Brainwave family, Lord McNicol!

#Brainwave #BrainwaveCharity #NewPatron #SupportingChildren #SupportingFamilies #MakingADifference

🎧 A podcast worth a listen.

We wanted to share this podcast from a fantastic Bristol-based charity supporting children and adults with cerebral palsy, along with their families and carers.

Their work helps people fulfil their potential, while creating opportunities for ...connection, fun and personal development.

The podcast may be particularly relevant to those across Bristol, Gloucestershire and Somerset, as well as adults living with cerebral palsy across the UK.

Have a listen and share with anyone who may find it useful. 💙

🎧 Listen here: https://www.podbean.com/ew/pb-8bjyz-1b28571

We’re looking forward to attending the @dorsetparentcarercouncil Big Event on 30 September! 💙

This free event is a great opportunity for families across Dorset to discover SEND support, services and opportunities, ask questions and connect with organisations who are there to help.
...
Denise, our Learning & Development Specialist, and Elizabeth, our Family Support Worker, will be there representing Brainwave.

If you’re attending, come and say hello! 👋

#Brainwave #DPCC #SEND #SENDSupport #Dorset #FamilySupport

💙 Making a difference together.

We’re proud to work alongside @nova.sports._, an organisation that shares our passion for helping people reach their potential.

Nova Sports provides inclusive and accessible sporting opportunities for people with disabilities across Bath, ...Bristol, Somerset and Wiltshire.

Together, we’re creating more opportunities for people to build confidence, develop skills and thrive.

#Brainwave #NovaSports #MakingADifference #InclusiveSport #DisabilitySport #Somerset

Could Brainwave help your child - or a family you know? 🎈

Brainwave supports children with disabilities, developmental delays and additional needs through specialist Therapy Programmes designed around each child’s individual goals.

Parents and carers can contact us directly. ...Your child does not need to have a diagnosis, and you do not need a referral from a healthcare or education professional.

At Brainwave, families can:

🎈 Attend a full-day assessment with at least two specialist qualified therapists
🎈 Receive a bespoke Therapy Programme designed around their child’s needs
🎈 Learn activities that can be incorporated into everyday life at home or school
🎈 Receive video demonstrations, a detailed report and, where appropriate, equipment to help them get started
🎈 Access continued support between assessments

Our therapists help children work towards greater independence by supporting their mobility, communication, learning and development.

Thanks to charitable funding, UK families with a gross household income below £70,000 currently pay only a £100 per assessment, with no additional assessment contribution required. Support is subject to funding availability.

Children must attend their first Brainwave assessment before their 12th birthday.

Find out more and complete our Family Enquiry Form: https://brainwave.org.uk/family-enquiry-form

Please share this post - you may help a family discover support they didn’t know was available. 💚

#Brainwave #SENDSupport #AdditionalNeeds #ChildDevelopment #SpecialistTherapy

IRLAM SUMMER GAMES 💚🧡

Create Sports ran our very first football tournament which was a huge success. All the money raised was donated to an incredible charity charitybrainwave

Huge thank you to everyone who came on the day and made it so special. 🙏

Same again ...2027?

#irlamsummergames #charity #tournament

“People often see my disability before they see me. But disability doesn’t mean inability.”

Living with cerebral palsy, Alby is on a mission to challenge stereotypes and change how people see disability.

He recently completed a Hybrid Hyrox in an incredible 52 minutes - ...raising vital funds for charitybrainwave

You can support Alby by clicking the link in our bio.